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Vietnam flagHannie
Live with gratitude - Lupus patient I enjoy every single day of my life with gratitude. I am still alive and not "feeling ailing" thus being glad for that. The last 2 weeks passed painfully and heavily for my family and me. I was supposed to have the flare-up phase of my Lupus and it was never expected to come that early and suddenly. My kidneys failure gets worse extremely and tragically, which turns into Chronic Kidney Failure (CKF - phase IV). My blood pressure reached 190/100 which was surprisingly high, my blood test got the worst result compared with all the blood tests I'd taken before, my ankles and legs experienced the painful swelling which hindered me from walking properly. I could not fit any of my shoes and needed to buy a bigger size pair of sandals. After 2 weeks with new prescriptions and a healthy lifestyle, my health is optimistically better and I do hope it gets more stable. The swelling seems to be reduced a lot, I can walk in my old shoes without difficulty; hypertension is back to mild but still moderately high 140/80. Finally, I can go out and enjoy the outside life and that's how life is. To those who have not heard about Lupus, let me tell you in brief; it is an autoimmune disease which means your immune system attacks the healthy cells in your body. There's always a domestic fight in your body, that's how I try to understand for the most simple definition. The patients who are diagnosed with Lupus hardly have any serious symptoms until it's getting severe. A lot of cases which have been observed, just catching abnormal mild symptoms which are visible such as having rash over your cheekbones and/or the middle nose area like the butterfly rash; hair loss, mild to the extreme; fever, light to high; sudden and random bruises on skin... There is NO CURE for Lupus but medical interventions and lifestyle changes can help to control it. Since I was diagnosed with Lupus 3 years ago in June 2017, every day, I am grateful to have another day to live and enjoy my magically beautiful life. 3 years passed and I wish to have more and more 3 years. So long as I've still got my health, I don't mind how poor and "ugly" I am. P/S: This post was written in June 2020

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Live with gratitude - Lupus patient

I enjoy living every single day of my life with gratitude. I am still alive and I'm not feeling "like I'm ailing" and I'm glad for it.
The last two weeks passed by painfully and with a lot of difficulty for my family and I.

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@Dustin thank you so much Dustin.
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Hannie, stay strong, pray for you
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I feel perfectly inspired by your share of your closest friend. Since I know how life is sharp and short, I enjoy living it with full energy and gratitude. I am glad that I can wake up in the morning, listen to morning sounds, and feel that I am alive. Most of the time, my condition is under control. However, there are some flare-up periods that trigger negatively my disease. I do want to do a lot of things. therefore I always remind myself that I must be healthy to do all of that. I thank you a lot for your prayers. I pray for your friends and you too!
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Sending you healing thoughts and good wishes. One of my closest friends has Lupus. She was diagnosed with Lupus about 15 years ago. It's something she has managed well with medications, diet, and lifestyle choices. She is now 46 years old and her main issues are inflammation, fatigue and anemia. Like you, she is grateful for everyday and she lives her life in such a generous way, joyful way. She is a choreographer, dancer, actor, and writer, and though this might sound strange, I think that her experience with Lupus deepened her artistry. Thank you for sharing your story! I wish you a lifetime of joy and radiant health. I pray a cure will be found very soon.

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